Never There

Never there…..kind of like the FDA not including diabetes in their series of patient meetings!!! Go sign the petition so we can have the FDA actually *be there* for us for a change!

I need your arms around me, I need to feel your touch
I need your understanding, I need your love so much
You tell me that you love me so, you tell me that you care
But when I need you baby, you’re never there

On the phone long, long distance
Always through such strong resistance
First you say you’re too busy (Too busy to meet with diabetics?  There’s 26 million Type 1 and Type 2’s in the US alone!)
I wonder if you even miss me

Never there
You’re never there
You’re never, ever, ever, ever there

A golden bird that flies away, a candles fickle flame
To think I held you yesterday, your love was just a game
A golden bird that flies away, a candles fickle flame
To think I held you yesterday, your love was just a game

You tell me that you love me so, you tell me that you care
But when I need you baby
Take the time to get to know me (FDA, get to know us!!!)
If you want me why can’t you just show me
We’re always on this roller coaster (Roller coaster of blood sugars, with test strip results we can’t completely trust….)
If you want me why can’t you get closer?

Never there
You’re never there
You’re never ever ever ever there
~Never There lyrics, by Cake (with some additional thoughts by yours truly.)

OneTouch Made Me Feel So Much Better

It’s like they read my mind! I’ve been using OneTouch test strips for years now, and was always frustrated that the bottles were packaged in sets of 25 strips each. I mean, seriously? I can blow through 25 strips in a couple of days if I’m on the first legs of a new Dexcom sensor (and have to calibrate it and/or don’t trust it yet,) or if I just have wonky sugars I’m trying to chase down. My answer to this supply issue has always been to immediately combine 2 bottles of fresh test strips into one – so I have more available to me for longer in my “diabetes checker” pack.

More strips per bottle!!!

They look the same….only different…

And the boxes of test strips have always been enormous compared to the amount of product that is within them. A mere 100 test strips in a 3″ x 2.5″ x 2.5″ box. It takes up a significant area of my diabetes supply closet. Consider the shelf real estate it takes up in the pharmacy?

So, imagine my surprise when I picked up my 3 month supply of test strips from the pharmacy this morning. I actually left the store, walked out to my car, shook the bag, and went, “huh?” I hadn’t had coffee yet, so I was a little slow on figuring things out. I went back inside and told the pharmacy tech that it felt a bit light for 300 test strips.

(What I actually said was, “Dude, are you sure there are 300 test strips in here?” and he was like, “Um, yeah, I think so, let’s just look and see.” He’s a nice sort of guy – we have that kind of banter about once every 3 months. More frequently during allergy season, but I digress.)

Sure enough, we tore the package open, and out come 3 smallish boxes, holding a whopping 100 test strips each. Angels sang, the sun came out from behind the clouds – it was awe inspiring. Guess it didn’t take much to make me happy this Friday morning, but it’s the little things like this that make me feel better.

Less real estate taken up in my closet, too!

Less trees were destroyed in the making of this product, yay!

P.S. StripSafely, ya’ll!!

Wordy Wednesday – Strip Safely

Unless you’ve been living under a diabetes rock (let’s face it, some of us DO crawl under a rock on occasion with regards to diabetes – no judging) you’ve probably already heard of the Strip Safely campaign. But if not, in a nutshell, it’s this: “Blood glucose test strips are at the center of diabetes life. The FDA acknowledges there are inaccurate strips in the marketplace but has no process to remove them. People with diabetes are at risk from inaccurate strips. Let’s change that.” And with regards to the July DSMA Blog Carnival topic: Test strip accuracy is important to me because I want to be here for a long, long time, and my health depends on the accuracy of the tools I use to manage it.

The rising cost of healthcare seems to be moving in lock step with the increasing numbers of people being diagnosed with Type 1 and Type 2 diabetes. If people with diabetes cannot trust key tools – i.e., test strips used in glucose meters to measure blood sugar levels – we use to help manage our disease and (hopefully) offset potential complications, how can we be expected to keep ourselves as healthy as possible so that we do not further drain our healthcare resources? It only makes sense for insurance companies and others with skin in the game to get involved with this. It’s a win-win for everyone involved if we can STAY HEALTHY. Strips & CGM sort of matching, yay!The picture above shows my blood sugar readings from the 2 main meters I use and my Dexcom CGM. While I’m thrilled that they are all within 10 points of each other, I’m not really thrilled at that number, but hey – it’s the common post-breakfast spike I tend to have and it’s already on it’s way down. Whew.

I feel I have the luxury of “trusting” my meters and their test strips to a good extent because I’ve seen my HbA1c numbers reflect what my glucose meter readings have told me over time. But I know at some higher ends of the glucose spectrum, and some lower ends, things can get sketchy with regards to accuracy. And what about all the other people who can’t afford expensive meters and supplies and have to “make do” with potentially sub-standard strips and meters? Like the campaign says: let’s change that.