You Know Who You Are #DBlogWeek

Rounding out the prompts from #dblogweek last week – no week focusing on blogging about diabetes would be complete without sharing links to other blogs and their respective D-people of note. There are SO MANY wonderful diabetes advocates and bloggers out there that I could never name them all here, but I’ll make a valiant effort at noting a small collection of favorites.

So many circles of diabetes, friends, love

You know who you are….

  • The sassily perfect chick with the spunky kid so close in age to my own…. I read your blog, then met you, and immediately knew we would be friends.
  • The guy up in Minnesota who shares my love (although, mine is now nostalgic) for the Deltec Cozmo insulin pump. (And is part of the Diabetes Hope Conference TODAY!)
  • The first diabetes advocate/blogger I ever started reading who I finally got to meet, and drink copious amounts of wine with, in person in 2013.
  • The diabetic mommy who is on her way to becoming a mommy for the second time, and blogging all along the way.
  • The man who finds such wonderful happy mediums, and spends time to comment and provide valuable insights to others on a regular basis.
  • The knitter of yarn, and metaphorical knitter of people, whose Diabetes Blog Week helped me get started on this blog in the first place!
  • The girl with the portable pancreas who has been so supportive from afar, but I was thankfully able to hug her in person last year, and hope to do so again in the near future.
  • The continental traveler who is now sharing the consequences of hypoglycemia from across the continent.
  • The kindred spirit I’ve come to know through her blog, always striving for an A1C of below seven.
  • The local friend found through support groups and blogging, who keeps it real, one unit at a time.
  • The trio of amazing women who are involved and advocating on an almost daily basis to make life better for all of us with diabetes. Their support of all is inspiring, amazing, awesome.
  • The sweet girl (whose blog name reminds me of something my Mamaw would say) who is constantly exploring new tech and tools for her diabetes management, and makes sure we know about them, too.
  • The man with a family, a job – and oh yeah, Type 1 diabetes –  who has a penchant for making me start singing the song that inspired the name of his blog.
  • The girl-and-her-hubby (who are awesome at playing Euro-games) who are embarking on a similar journey as many of us – starting their married life journey, and hoping to conceive a family together.
  • The tongue in cheek mom of a T1 kid, who is staring down the barrel of T1 herself. (Hairy hugs to you, Bigfoot.)
  • The recently married and moved and involved-in-life-chaos-but-always-strong-and-helpful diabetic advocate – she’s flown through tons of stressers this year with flying colors.
  • The dancing girl with so much inner and outer beauty it makes me desperately wish I didn’t have two left feet.

You all should know who you are, because you are all part of the wonderful, mysterious, information-filled, knowledge-encouraging, thought-provoking world that is the Diabetes Online Community.  Thank you, thank you, thank you for being a part of my life!

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Change the World…because We Are the World (of diabetes) #DBlogWeek

I’m keeping today’s first Diabetes Blog Week post pretty short and sweet, since I recently posted about CGM coverage for Medicare patients (or rather, the lack thereof) and that is one big top-of-mind issue that gets me riled up, and makes me spin on my head when people don’t understand how life-changing and life-saving a CGM can be for a person.

The second thing that I continue to feel is really important in diabetes circles is *talking about it.* Talking about what works for us in diabetes care/management. Talking about what doesn’t work. Giving tips, tricks, suggestions.

Sure….the majority of us are NOT medical professionals, but we have become professionals at staying alive with this crazy disease. It’s so nice to talk to others about it, commiserate, get that feeling of camaraderie from one another. (Which is why I signed up lickety-split for the Diabetes UnConference in Vegas for March 12-15 next year! I. Can’t. Wait!!!)

One thing that gets to me, and tends to make me shy away for a bit from the DOC as a whole is when a rift happens, and  people get defensive or hurt or offended at our multitude of differing opinions on various things – like posting their A1c numbers or BG goals, using a pump/not using a pump, using a CGM/not using a CGM, or using whichever pump or CGM, or whatever-in-the-world-it-is-that-is-different with regards to our personal diabetes management strategies. I think we in the DOC are, as a general rule, a “helpful” lot of people. We can all have dramatically different opinions about the same things that affect us all because of that multitude of common, yet variable, experiences. At the end of the day, we all are individuals trying to save ourselves or our loved ones, and if we’ve learned nothing from diabetes, the one thing we HAVE learned is Your Diabetes May Vary. Let’s all continue to support each other, and lay off on the attacks. We ARE the world we know in the Diabetes Online Community….we are the ones to make a brighter day, so let’s keep advocating, together 🙂

(gosh, that song always makes me want to stand up and sing at the top of my lungs – so much awesome!)

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Giving Thanks

Thanksgiving may be over, but there’s still so much to be thankful for. I’m thankful for so many things – but especially in diabetes-circles, I’m thankful for discovering the DOC, for meeting so many local women who have diabetes (both type 1 and type 2), and for being able to spend time with them and fellowship on a regular basis. They are such a vibrant and lovely group of women who share their experiences openly, and listen to the rantings of all of us who have had “good” days with diabetes, and “bad” days with diabetes. We all just *get it*, and I truly appreciate the time and effort they spend to come over and hang out. (They also bring amazing snacks and wine to share, which are always welcome in my house!)

Love them!! My d-girls

Last night, we also collected coats and winter wear to donate to our local Coats for the Children campaign. There’s a stack of over 20 adult and kid’s-sized coats, mittens, ear-muffs and gloves ready to be donated. It feels so good to give thanks, and also give back to the community to those less fortunate. My heart is so full of love and joy!! (And for the record, I am not going to the Mall or anywhere else with crazy crowds from now until after Christmas, because the fastest way to ruin my sense of holiday cheer is to have someone flip me off over a parking space. Not going to do it!!)

Diabetes Awareness Month Photo-a-Day 15, 16, 17- Alert, Blood, and DOC

Still recovering from last week’s stomach virus attack on my household, so these pics for prompts will be short and sweet.

DAMPAD15_Alert

Argh. These kinds of alerts, especially right after you brush your teeth or in the middle of the night, are ANNOYING.

DAMPAD_16Blood

Yep, that one’s a bleeder. To change or not to change? I rolled the dice, and this one ended up being just fine.

2013-11-17_DAMPAD17DOC

The DOC has provided so much support, and also lots of neat tips and tricks. My favorite one: cluing me in that wearing my Dexcom sensor for more than the recommended 1 week was perfectly fine, and teaching me about SkinTac and Opsite Flexi-fix that keeps these suckers on even through a nuclear holocaust.

Wordy Wednesday – My Body

This week’s installment of Wordy Wednesday is brought to you in 2 parts by My Body.

1. I’m still recovering from almost a week of vacation in Florida that involved somewhere around 20+ hours worth of being in the car. Two-and-a-half year olds make car travel…interesting. On top of that, My Body really didn’t like being mushed up in a car for hours upon hours at a time….I have 3 cricks in my neck and shoulders, my upper back feels like someone has it in a vise grip, and if my feet want to just go ahead and fall off, that’s OK – because they have been hurting and aching for weeks now that I’m not taking Meloxicam for my plantar fasciitis anymore.

But one of the highlights of my trip to Florida, that made all the aches & pains worth it, was getting to hang out in real time and in real space with Christel from theperfectd and her lovely daughter and father. Read her blog post linked there – I say “ditto” to all that. She is awesome, and we would most certainly be friends if we had met up in life outside of diabetes and the DOC. And our kids were so stinking cute together, even when they both defied nap-time.

Nom nom...cookies!

Cookies BEFORE lunch?
Why, yes, I believe you should!

2. This song by Young the Giant just fits. (Amazing how you listen to songs and suddenly they have diabetes-related messages to share?) Despite My Body telling me “no” over and over again, I will never quit in this struggle against diabetes. I most certainly want more.

Stop, the train is ridin down to the station
where you lived when we were school kids
Hey, the rails are caught now
And I am falling down fools in a spiral
Round this town of steam

My Body tells me no, but I won’t quit
Cause I want more, cause I want more
My Body tells me no, but I won’t quit
Cause I want more, cause I want more

Stop the train is riding down to the station where I lived
When I was a cool kid
Hey, is it my fault that the fallen embers burn down in a spiral
Round your crown of thieves

My Body tells me no, but I won’t quit
cause I want more, cause I want more
My Body tells me no, but I won’t quit
cause I want more, cause I want more
it rides out of town

Oh, it’s my road, it’s my road, it’s my road
It’s my road, it’s my road, it’s my road

And it’s my war, It’s my war, it’s my war
His eyes are open
His eyes are open

Oh, cause I want more, I want more
Want more
His eyes are open
His eyes are open

(Hey, hey, hey)

My body tells me no but I won’t quit
Cause I want more, cause I want more
My body tells me no but I wont quit
Cause I want more cause I want more
It rides out of town

~”My Body” lyrics by Young The Giant

The Internet. Love. Hate. Religion. Politics. Health. The ACA. Mean People.

My brain is still reeling from being completely overwhelmed with…I don’t even know – astonishment? Confusion? Disgust? So many emotions and thoughts that even the title of this blog post couldn’t cover everything I wanted it to be about. Let me work out the chain of events, and maybe that will help pull it all together.

I’d just gotten through reading and sharing a couple articles about the ACA (Affordable Care Act) on my 15wait15 Facebook page that were written by Karmel Allison on asweetlife.org. I don’t know her personally and haven’t read much of her stuff – just happened to read some today and found it interesting and share-worthy.

I saw a little (but not much, I admit, I got bored) of the President’s Rose Garden speech about the ACA. Then I see posts pop up from people in the DOC about Karmel Allison being the women who nearly fainted while standing behind President Obama as he was talking about the ACA and glitches in the online marketplace website, etc.

Interested now, I cruised on back to the speech, read the article that someone had linked, watched the video, then did what I usually do with all articles I read online – read the comments underneath. I wish I hadn’t.

Just a few snippets here – click on the link above to read more if you dare.

  • The-Monk Oct. 21, 2013 at 12:26pm “That’s called rotating the Latino’s so it looks like there are more in the camera to impress any Latino’s watching.That or her ObamaScare health policy Doctor put her on the wrong meds and she’s about to die.”
  • drattastic Oct 21, 2013 at 12:26pm “Junkie, still in bad share after her latest abortion.”
  • rickc34 Oct. 21, 2013 at 1:18pm “It was all that concentrated evil Obama aka son of satan puts out”

…and those aren’t even some of the worst comments. I can’t bear to give any more of them added attention. My heart just broke. THIS is how people choose to respond to this? Some poor woman looks visibly distressed, needs to leave the podium behind the President, and you assume the worst? You take to the internet to bad-mouth her, tout conspiracy theories, and say horrible things about her, all because she appears to be aligned with the current President of the United States, and you do not like him/his policies? Shame.

I hope that those people realize now that she is a Type 1 diabetic, who is *pregnant* for Pete’s sake, so she could have had a low, been dehydrated, felt woozy, who knows. I’m sure it had nothing to do with BEING ON NATIONAL TELEVISION STANDING BEHIND THE PRESIDENT or anything like that. Gosh, I think my own sugar just dropped a few points from my brain going crazy thinking about that. And pregnant??!! Geesh! Forgot blood sugar and bodily control then.

My thoughts still aren’t quite organized, and I’m still so angry I could spit nails, but here’s what I have to say, take it or leave it:

  • Shame on anyone who relished in her discomfort, called her names, assumed it was staged, used it as a stepping stone for their own political hate-filled agenda.
  • The internet makes it oh-so-easy to have diarrhea of the mouth/fingers. Think before you comment. Pretend that person is standing next to you in THE SAME ROOM. Would you say that comment out loud? The internet has served to encourage a League of Extraordinary Bullies, and I hate it for that, almost as much as I love it for connecting me to the community of people called the DOC. The dichotomy does not escape me.
  • I don’t care what your religion or political leanings are – it’s no excuse for verbally assaulting someone else on the internet (whether you know them or not!), or anywhere else for that matter. I try not to judge, but in my opinion, you purposefully saying/doing hurtful things means YOU are a mean person. And I will not associate myself with mean people.
  • I try very hard not to discuss religion or politics online anymore, not even on my personal social media pages. It is too polarizing, and there are people I love dearly who will say things that make me want to scream, and I bite my tongue instead. I just don’t understand why we can’t all have different beliefs and opinions, and still get along and find common ground? You don’t have to be my best friend, and I don’t have to be yours. We CAN have different beliefs and thoughts on religion, or politics, or child rearing, or anything else of a million different things that make us individuals, *without* it resorting to being mean-spirited and hateful towards one another.
English: Love Heart symbol interlaced

Love Heart symbol interlaced (Photo credit: Wikipedia)

All that to say….I guess it all comes down to having mutual respect for one another in this world. I’m not sure that exists anymore – certainly not on a grand scale, and that makes me very sad.

There are precious few things that will offend me or cause me to blow up in anger – if you hurt me or someone I love, physically or emotionally,  you can expect a fight. If you are out in the world hurting other people/animals physically or emotionally, or doing things that could lead to them being hurt, I will defy you. (I can’t go too far down the rabbit-hole here. I eat meat, I know animals are killed for it, there are many other social issues that impact people, etc, but hopefully you get the gist of what I mean here.)  Otherwise, we can live in relative peace and harmony no matter who you are, what you do, what you believe in. I have done my best over the years to help people and help animals. Note: I am not guiltless – I know I have emotionally hurt people in the past, and I am sorry for that. I was young and stupid at one point, too. But I grew up and learned better. Tried to make better friends, better choices, and learn from my experiences. I like to think that Emily Dickinson was onto something when she wrote:

“IF I can stop one heart from breaking,
I shall not live in vain;
If I can ease one life the aching,
Or cool one pain,
Or help one fainting robin
Unto his nest again,
I shall not live in vain.”

Could you imagine a world where THAT was what people were concerned with instead of punching people in the internet-face with their own hate-filled speech and rhetoric? We are so far away from that kind of “helping” place, it’s pathetic.
I’m so tired of it. I can’t think about this anymore. I need to go give my daughter a hug.

Some posts/comments from others around the DOC about this follow. So many others have expressed what I feel as well, but in far better ways. I think it’s safe to say,  we’re all pretty riled up.

Pregnancy Diet Plan with Type 1 Diabetes

No, I’m not pregnant. Although, I desperately wish I was, that ship may have sailed.

Regardless, I’ve been chatting with a lot of d-friends lately who are looking into the getting-pregnant-business, and they have been asking about pregnancy diet plans.

Below is what my endo’s nutritionist gave me, and it worked like a charm every day that I followed it. And by “charm” I mean: relatively reliable and consistent good blood sugars within a range I could handle at that point in my pregnancy. Blood sugars are ALWAYS a moving target, but pregnancy makes that even more of a challenge. It felt like I was changing basal rates and insulin-to-carb ratios almost every week.
As we all know, your body and diabetes may be different, but this is what I went by, and this worked for me. I am connecting this with Type 1 diabetes because that is what I know, however, I don’t see why it wouldn’t be applicable for a Type 2 or gestational diabetic as well – as always, you should consult with your doctor to discuss what is best for you as an individual.

Everything in ( ) is examples for that meal – you may obviously swap it out for things you like & different stuff each day – these examples are using the Diabetic Exchange lists. I was a little cavalier and didn’t quite stick to it 100% of the time. When you are pregnant and crave a chicken quesadilla, you must have a chicken quesadilla, though it may not mesh exactly into the options for food at dinnertime.

But to this diet’s credit – my HbA1c’s were fabulous throughout the 9-ish months of pregnancy – 5.2, 5.7, and 5.9 respectively. AND my daughter came out with no issues whatsoever (despite my fears throughout the entire 37 weeks that every high or low blood sugar was killing her. If I could do it all over again, I would do my best to NOT be so stressed out, and instead just relish in the ability to BE pregnant.)

Breakfast
– 1 protein (one egg)
– 1 starch (one slice of whole wheat toast)
– 1 milk (1 cup skim milk)
– 1 fat (1 tsp margarine or 1 piece bacon)

Morning Snack
– 1 protein (1 oz. cheese)
– 1 fruit (1 small apple)

Lunch
– 3 proteins (3 oz. lean turkey)
– 2 starches (2 slices whole wheat bread)
– 1 milk (or 1 fruit) (1 cup plain or lite yogurt)
– 1 fat (1 tbsp diet mayonnaise)
– 2 vegetables (1 tomato / 1 cup raw broccoli)

Afternoon Snack
– 1 protein (1 tbsp peanut butter)
– 1 starch (6 crackers)

Dinner
– 3 proteins (3 oz cooked chicken)
– 2 starches (1/2 cup pasta, 1 slice bread)
– 1 fruit (1/3 of cantaloupe)
– 1 fat (1 tsp margarine)
– 2 vegetables (tossed salad with tomato)

Bedtime Snack
– 1 protein (1 slice cheese)
– 1 starch (1/2 English muffin)
– 1 milk (1 cup milk)

Česky: Pizza

Pizza (Photo credit: Wikipedia)

Notes & info links:

  • I had terrible morning (really, all day) sickness throughout my pregnancy, up until the day I gave birth. The ONLY thing that kept me from retching all day was making sure I ate something every 3 hours. It was like clockwork, and I could almost biologically tell you when it had been exactly 3 hours because I would start getting nauseous.
  • Near the end of my 1st trimester, my husband and I went on a cruise. It was amazingly beautiful and relaxing, but my most favorite memory is eating a piece of PIZZA almost every night around 11pm so that my blood sugar would stay stable throughout the night. I AM NOT KIDDING. Pizza!! It was an historic event of perfect blood sugars with relation to that usually-nightmare-blood-sugar-causing food. (This only happened in 1st trimester and beginning of the 2nd. During the crazy-insulin-resistant-3rd trimester….pizza was off the table.)
  • There are tons of resources out there around pregnancy with Type 1 diabetes. Before I really engaged with the breadth of the DOC, I chatted a lot on the boards at  http://www.diabeticmommy.com/
    TuDiabetes also has forums and groups filled with women looking to get pregnant, currently pregnant, or post-pregnancy who can be great sounding boards for questions: http://www.tudiabetes.org/group/diabetesandwomen
  • And for those of us who face infertility (diabetic or not) and issues with just getting pregnant in the first place: http://www.resolve.org/