You Know Who You Are #DBlogWeek

Rounding out the prompts from #dblogweek last week – no week focusing on blogging about diabetes would be complete without sharing links to other blogs and their respective D-people of note. There are SO MANY wonderful diabetes advocates and bloggers out there that I could never name them all here, but I’ll make a valiant effort at noting a small collection of favorites.

So many circles of diabetes, friends, love

You know who you are….

  • The sassily perfect chick with the spunky kid so close in age to my own…. I read your blog, then met you, and immediately knew we would be friends.
  • The guy up in Minnesota who shares my love (although, mine is now nostalgic) for the Deltec Cozmo insulin pump. (And is part of the Diabetes Hope Conference TODAY!)
  • The first diabetes advocate/blogger I ever started reading who I finally got to meet, and drink copious amounts of wine with, in person in 2013.
  • The diabetic mommy who is on her way to becoming a mommy for the second time, and blogging all along the way.
  • The man who finds such wonderful happy mediums, and spends time to comment and provide valuable insights to others on a regular basis.
  • The knitter of yarn, and metaphorical knitter of people, whose Diabetes Blog Week helped me get started on this blog in the first place!
  • The girl with the portable pancreas who has been so supportive from afar, but I was thankfully able to hug her in person last year, and hope to do so again in the near future.
  • The continental traveler who is now sharing the consequences of hypoglycemia from across the continent.
  • The kindred spirit I’ve come to know through her blog, always striving for an A1C of below seven.
  • The local friend found through support groups and blogging, who keeps it real, one unit at a time.
  • The trio of amazing women who are involved and advocating on an almost daily basis to make life better for all of us with diabetes. Their support of all is inspiring, amazing, awesome.
  • The sweet girl (whose blog name reminds me of something my Mamaw would say) who is constantly exploring new tech and tools for her diabetes management, and makes sure we know about them, too.
  • The man with a family, a job – and oh yeah, Type 1 diabetes –  who has a penchant for making me start singing the song that inspired the name of his blog.
  • The girl-and-her-hubby (who are awesome at playing Euro-games) who are embarking on a similar journey as many of us – starting their married life journey, and hoping to conceive a family together.
  • The tongue in cheek mom of a T1 kid, who is staring down the barrel of T1 herself. (Hairy hugs to you, Bigfoot.)
  • The recently married and moved and involved-in-life-chaos-but-always-strong-and-helpful diabetic advocate – she’s flown through tons of stressers this year with flying colors.
  • The dancing girl with so much inner and outer beauty it makes me desperately wish I didn’t have two left feet.

You all should know who you are, because you are all part of the wonderful, mysterious, information-filled, knowledge-encouraging, thought-provoking world that is the Diabetes Online Community.  Thank you, thank you, thank you for being a part of my life!

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TCOYD Saturday Snapshots #DBlogWeek

Yeah, yeah, I know it’s Monday, and technically #dblogweek is over, but I couldn’t bear to leave the week of writing prompts unfinished. Karen is so amazing for organizing it, and I’m so grateful to her for being a large part of the impetus to get me started in blogging in the first place! (It was Diabetes Blog Week 2013 when I really got the gumption to start Fifteen Wait Fifteen – 1 year now, yay!)

Saturday, I spent the majority of the day attending the Taking Control Of Your Diabetes conference in Raleigh, NC. It was my first time attending, so I had no idea what to expect. I’ll let the pictures describe it from here on out…..

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Opening words by Dr. Steven Edelman, founder and director of TCOYD. He is a type 1 himself! He was a great presenter, and a little more racy than I expected, but in a super fun way!

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This slide made me giggle, because the first 2 bullets that show “typical” Type 1 diabetic traits most certainly do not apply to me. Thankfully, he had the disclaimer of “usually” in there.

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This slide didn’t make me giggle at all – more like, tons of “yeah, ugh,” because the variables that affect sugars on a daily basis seem limitless, and too many to number or put on just one slide.

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You can’t go to a conference without seeing people you know! Two wonderful friends and fellow type 1s – Carlyn (from oneunitatatime.wordpress.com) and Karen, my hula hoop instructor!

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Branden Russell of Team Novo Nordisk, and Dr. Edelman staring intently at his smartphone. Maybe they were trying to take a selfie? More info on Team Novo Nordisk at www.teamnovonordisk.com

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In the intro, there was a lot of talk geared towards Type 2s, but this year, they did have breakouts and different sessions that were Type 1 or Type 2 specific.

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Oops, I’m pretty sure I dropped these in one of the sessions. At least I was able to follow them like cookie crumbs and find my way back to my chair!

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Seeing a Star Trek Federation cover for an OmniPod made me ALMOST want to switch from using my Medtronic 723. Almost.

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Carlyn, Alex, and Erika manning the JDRF booth at TCOYD. Just a few of my favorite peeps!

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Dr. Jeremy Pettus giving a talk about “Alcohol and Diabetes – Do they mix?” Interesting to me (obviously, since I do enjoy my red wine)….found out some new things, as well as having some other things I already knew confirmed. I’ll have to save the info for a blog post sometime. More info and some videos featuring Dr. Pettus at www.thedoctorschannel.com

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Before I left the conference, I stopped by to see several friends who were manning other informational booths. Here’s a blurry picture with Donna – an awesome Type 2 who was volunteering at the ADA booth.

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What does 50 years with type 1 diabetes look like? I had never before seen it in person, but today I did! I was lucky enought to meet and hang out a bit with Mary Beth from Columbia, NC who is a Joslin 50 year medalist. HERO! That in itself made the conference more than worth it.

 

 

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My Neverending Story #DBlogWeek

It was dark. In the beginning, it’s always dark.
The times in between are huge Nothings. I am bored…..

Then suddenly, I heard an opening, a crinkle, a rip, a zip, and then the light – oh, the beautiful, glorious light! I was blinded for a moment, and as my world came into focus, I saw her….an eyebrow raised, a curious look on her face, her eyes squinting and bleary. What time was it? Oh, late.

Shuffle, shuffle, shuffle, scrrrip! of my bodily pockets….I was laid open and exposed like a Tauntaun being used for warmth on Hoth. (That girl and her sci-fi references, geesh. I’ve picked up on more of them than I realized.)
She usually only removes a couple of my prized possessions at a time….a bottle of clear liquid with an orange cap, and the blue and white monster-jabber that doesn’t work anymore, but holds the clear snake in place while she is doing whatever-it-is-that-she-does. But tonight, she took out one of the copper and black cylinders of energy. Ohhhh, one of THOSE nights. She mutters something about, “changing every freaking thing at the same time,” under her breath. Bzzzzt bzzzt bzzzt sounds echo through the room.

She moves away from me, and I hear more rustling and activity. I see a flash of a purple something in her hand, and I hear a metallic whirring and screeching sound.  Papers and plastic crinkle, a couple of hissing sounds of…something opening, maybe? I don’t have a good angle to see what she is doing, but then she took the bottle of liquid, and has some sort of metal-jabber-tube attached to it now. A spray of band-aid smelling liquid comes my way, and soaks into my fabric. Eh, no worries. It was kind of a nice sprinkle. She turns away, and finishes connecting all the things she was connecting, and deftly hides the purple device somewhere on her person. Wow, that just magically disappeared under her clothes…where did it go? Wait – I see a dim light coming from her chest area. Ah, got it.

Back to me now, she returns the blue and white monster-jabber, and the now 1/3 empty bottle of liquid. She holds me in place as she works my one metal finger around the outside teeth of the world I encompass….zerrrrpppp….. and then abruptly, all is dark again. I hope she gets some rest tonight. I’ve got maybe 3 days before I see her again…does she sleep that entire time, as I do? I’ve lost count of the number of times we have spent together like this. It’s always the same, but sometimes different. She is my world, and I am hers, neverending.

Good idea! No, it's a GREAT idea.

Although I’ve had a Minimed pump for several years now, I still pay homage to my original pump, the glorious and end-of-lifed Deltec Cozmo, by continuing to use it’s diabetes-supplies-case.

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(Took advantage of the wildcard option of Tell Me a Story for #dblogweek today.)

Don’t Bring Me Down #DBlogWeek

While today’s #dblogweek prompt is supposed to be about things that bring you down, I had to add something upbeat to temper it a little. (So, read through my post, then click on the “Don’t Bring Me Down” video. You’re welcome.)

I’m generally a positive person, and I do feel that if you harp on and always look to find the negative, you most definitely will find it. Every. Single. Time. By dwelling on the “bad,” you open yourself up to the self-fulfilling prophecy of seeing & experiencing everything in a negative way. It’s OK to think of what gets you down and recognize it’s existence…just don’t let it overwhelm or overtake you.

What gets me down? Here are the current top 3:

  • Pain. The all-day-every-day pains that I have in my feet, knees, back, shoulder, neck. It’s the other “invisible” disease that I hide from people. I don’t want anyone to feel sorry for me, so most of the time, I try not to let it show. There’s no point in mentioning it day-in-day-out, because talking won’t help it. I hope when I lose more weight, a lot of these pains will go away. I hope.
  • Exhaustion. Sheer exhaustion from dealing with diabetes 24×7. Having that exhaustion keep me from doing something fun is the real pisser.
  • Getting hijacked. When I am on a schedule, or have to be at a place at a certain time, and diabetes rears it’s ugly head with a mind-numbing low, and everything is thrown to heck in a hand-basket. Grrr. Especially when I need a clear head for a work meeting, and all I can do is quaff a juice box and hope I don’t sound like a crazy person on the conference call.

Those things will surely get me down, but, to put a positive spin on it….I  get knocked down, but I get up again…..Oooo, another good song to listen to! (….just one of many ways how I distract myself from getting bogged down with the bad – fake it until you make it! 🙂 )

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Over and Over – Poetry Tuesday #DBlogWeek

Over and over and over and over

Wake up to beeping, toss away sleeping
over and over.
Poke sore fingers, high sugar lingers
over and over.
Bolus in a rage, fight through the haze
over and over.
Sit down to eat, just want to weep
over and over.
Crash in my head, don’t know what I said
over and over.
Hope for a cure, commit to endure
over and over.
Find another way, live through the day
over and over.

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