Still Here

I’m still here…but just haven’t been in the mood to blog in quite a while. I read copious amounts of posts from other bloggers, I comment every now and then, but somewhere along the way, I’ve lost my own drive to speak out and let the entire world hear my voice through my blog. I’ve kind of gone “introvert” in my own way…I really only reach out and communicate (usually via Facebook) and advocate to my friends and family there. Over the past few months I’ve received several “friend” requests from people in the D-community….I’ve declined them all – not because I don’t want to know them, but because I *don’t* know them. My personal Facebook page is just that – personal. No offense, but I don’t want to open that up to a world of people I don’t know, even if we do all share diabetes in common.

I’ve been super busy living life to the fullest (I mean, that’s the REAL goal of all of us, right?), and working on my health. I have so many aches and pains, so many tweaks here and there to deal with, on top of the ever-present diabetes….I feel like I’m going to some sort of doctor every other week. Or more.

BUT, I haven’t let it get me down, and I have had a LOT of fun this year! I went on several vacations, including a Caribbean cruise with an awesome d-friend, and my first-ever trip to Disney World with my family. It was truly magical – I can’t say that enough. And you know what was especially awesome about that vacation? I rode ALL the rides I wanted to, and wasn’t the least bit self-conscious about my weight. (Thank you, gastric sleeve surgery!)

I feel like I have not been advocating *enough* about diabetes, but I have been participating in a personal way with my friends and family, teaching them in bits and pieces about what it’s like to live with diabetes, and posting informative things regarding Diabetes Awareness month. I guess this post itself can now count as my contribution to that this November, eh? One thing I am VERY much looking forward to that is D-related is the Diabetes UnConference coming up in March 2016 in Las Vegas (there’s also one in Atlantic City in September, but not sure yet if I can attend that one.) It was such an amazing experience in it’s first iteration this year, that I can’t wait to see what it will be like in March!

Just know this: you may not hear from me much anymore, if at all, but I’m still here. And, as long as I can take care of myself in the best ways I know how, I’ll be here for many, many happy and healthy years to come.

LiveLife

Diabetes UnConference – A Limerick of Love

There once was a dream and a venture
A weekend spent entirely without censure
We called it the Diabetes UnConference
It was filled with d-victories and confidence
The memories of it all we will treasure.

So much love!

Just a few of the many people I met at the first-ever Diabetes UnConference. We immediately shared a bond and a friendship that is indescribable.

The Cost of Good Health

I am thankful every-single-day that I have good insurance (through my husband’s work.) But it still makes my jaw drop when I see the breakdown of what just 3 months worth of test strips, lancets, and insulin pump supplies cost:

SuppliesCostPic

That does not include insulin itself, or my CGM sensors, which I’m sure would add on more crazy $$. Suffice it to say, I feel confident that without insurance, I would be paying around $1,000- $2,000 per month for all of the prescriptions and supplies I need just to stay alive. Now, could I stay alive using only insulin and syringes, and not using all the fancy technology? Sure. But you’d better believe my *quality* of life would not be the same. Having my insulin pump and CGM have helped me really rein in my blood sugars, which we all know helps keep our bodies from getting worn out so soon from so many highs and lows all over the place. Am I perfect in my blood sugar management? Heck no. But with these tools, I’ve come a long way from when I was on Regular and NPH injections when I was first diagnosed in 1994. My A1Cs were never below 9 until I went on the insulin pump. Ever since, they have been 7 or below, and for several years now, hovering under 6.5. I’d like to keep it that way for as long as possible, and hope and pray I have good insurance and can afford all of my diabetes prescriptions and supplies for the rest of my life (or until they find a cure, right??)

Insulin = LIFE for Valentine’s Day

http://www.p4dc.com/spare-a-rose/Considering the amount of sweets and candy whirling around the Valentine holiday, you have to know that insulin equals life for ALL of us – without it, glucose would just stir around in our blood stream, wreaking havoc on our bodily systems, making us feel like crap, and would (over time) lead to death. Thankfully, we have access to insulin here in the US, and those who need it can (usually) get it.

But in other countries around the world, people are DYING because they don’t have access to insulin, and children are some of the heaviest hit with need. The IDF is once again raising awareness of this need through their Spare a Rose, Save a Child effort. Through this program, just $5 – the cost of 1 rose for Valentine’s Day – can provide insulin or blood glucose test strips for 1 month for a child in need. The cost of a dozen roses – $60 – can provide insulin or test strips for a child for an entire YEAR. Life. For a year. An amazing gift.

I asked my husband to NOT give me any roses or flowers this year – I would rather that money go to help another person in this world LIVE with diabetes. I am grateful and thankful for the life I have been given, and have plenty of insulin for myself, so the least I can do is give some to others who are not so fortunate. In lieu of giving my daughter’s preschool teachers a gift for Valentine’s Day, I’m going to give them a note that tells them about the program, and how our family has donated and spared at least 20 roses so that we could help 20 children in their honor.

I hope my friends and family will do the same! Donate today at: http://www.p4dc.com/spare-a-rose/give/ 

http://www.p4dc.com/spare-a-rose/faq/

You Know Who You Are #DBlogWeek

Rounding out the prompts from #dblogweek last week – no week focusing on blogging about diabetes would be complete without sharing links to other blogs and their respective D-people of note. There are SO MANY wonderful diabetes advocates and bloggers out there that I could never name them all here, but I’ll make a valiant effort at noting a small collection of favorites.

So many circles of diabetes, friends, love

You know who you are….

  • The sassily perfect chick with the spunky kid so close in age to my own…. I read your blog, then met you, and immediately knew we would be friends.
  • The guy up in Minnesota who shares my love (although, mine is now nostalgic) for the Deltec Cozmo insulin pump. (And is part of the Diabetes Hope Conference TODAY!)
  • The first diabetes advocate/blogger I ever started reading who I finally got to meet, and drink copious amounts of wine with, in person in 2013.
  • The diabetic mommy who is on her way to becoming a mommy for the second time, and blogging all along the way.
  • The man who finds such wonderful happy mediums, and spends time to comment and provide valuable insights to others on a regular basis.
  • The knitter of yarn, and metaphorical knitter of people, whose Diabetes Blog Week helped me get started on this blog in the first place!
  • The girl with the portable pancreas who has been so supportive from afar, but I was thankfully able to hug her in person last year, and hope to do so again in the near future.
  • The continental traveler who is now sharing the consequences of hypoglycemia from across the continent.
  • The kindred spirit I’ve come to know through her blog, always striving for an A1C of below seven.
  • The local friend found through support groups and blogging, who keeps it real, one unit at a time.
  • The trio of amazing women who are involved and advocating on an almost daily basis to make life better for all of us with diabetes. Their support of all is inspiring, amazing, awesome.
  • The sweet girl (whose blog name reminds me of something my Mamaw would say) who is constantly exploring new tech and tools for her diabetes management, and makes sure we know about them, too.
  • The man with a family, a job – and oh yeah, Type 1 diabetes –  who has a penchant for making me start singing the song that inspired the name of his blog.
  • The girl-and-her-hubby (who are awesome at playing Euro-games) who are embarking on a similar journey as many of us – starting their married life journey, and hoping to conceive a family together.
  • The tongue in cheek mom of a T1 kid, who is staring down the barrel of T1 herself. (Hairy hugs to you, Bigfoot.)
  • The recently married and moved and involved-in-life-chaos-but-always-strong-and-helpful diabetic advocate – she’s flown through tons of stressers this year with flying colors.
  • The dancing girl with so much inner and outer beauty it makes me desperately wish I didn’t have two left feet.

You all should know who you are, because you are all part of the wonderful, mysterious, information-filled, knowledge-encouraging, thought-provoking world that is the Diabetes Online Community.  Thank you, thank you, thank you for being a part of my life!

dblogweek2014